Thursday, December 7, 2017

I'm a Survivor




I'm a survivor
I'm not gon' give up
I'm not gon' stop
I'm gon' work harder
I'm a survivor
I'm gonna make it
I will survive
Keep on survivin'

- "Survivor" -  Destiny's Child



December 5th, 2015: I laid awake in a dark bedroom, physically and mentally numb. Deep, pulsating pain from the fresh surgery wound fading away from the narcotic pain reliever pills. The deafening, heavy silence of the small hours closing in. My worn out eyes illuminated by my smartphone as I thumb-tapped words into a note taking app in an attempt to make sense of my new reality: I had cancer. In the coming days, weeks and months--and now, years--that reality twisted and morphed into the life I live today: I am a cancer survivor.

For those who hadn't followed, who met me after this phase, or don't know me and stumbled to my website because of my GoPro stuff, I was diagnosed with Type 1 testicular cancer in early December 2015. Luckily, because I found it early and got all the necessary procedures fast, my recurrence rate was very low from the beginning (there's a tendency for testicular cancer to spread quickly to lymph nodes in the abdomen and lungs). Once I knew that I didn't have to worry so much about my health I made a major life decision to move to Japan to begin a new chapter. I had a feeling it would happen, but the real battle with cancer--or how to deal with the title 'cancer survivor', to be more accurate--began as I settled into my parents' homeland.

It's really difficult to put to words what goes through my head when I have those moments but whatever it is it can be debilitating. I touched on this in previous writings but I feel comfortable enough to open up a bit more. I sunk very low a few times since moving to Japan, especially after hearing about people losing their battles with cancer, including those within my immediate social network. Survivor's guilt, it's a damn strange thing. Thoughts of 'why am I ok and not others?'; 'was my experience not serious enough to make a big deal out of it?'; 'why do I get to choose a post-treatment life while others' lives were stripped away so mercilessly?' would take my mind down a dark, downward spiral. Like that night after my surgery, I would stay awake many nights scribbling thoughts into my notebook in the dark. Looking back, it seemed like this mindset impacted other parts of my life, and coupled with the struggles of finding my footing with my new life in Japan, I spent long periods of time in a serious funk. I would be lying if I said I no longer am affected by those thoughts. I am, albeit much more diminished in intensity and frequency.

I felt inclined to open up a little bit about my low points at this timing because that part of my journey feels like it's somewhat behind me. This week, I'm happy to say that I passed my two year cancerversary with zero issues. Blood work, check; X-ray, check; CT scan, check. During year one, I was seen once every three months; year two, every four months; and now, as I enter year three, I will be seen by my doctor once every six months. I have to continue my check ups for five years since treatment but the two year mark is a milestone. Progress.

As much as the title 'cancer survivor' still makes me feel vulnerable, I am working toward making it a source of empowerment. Because it should be. I take these steps carefully, mindfully and honestly, and I'm starting to feel that progress. I am pretty stoked on that.

If you're curious about this journey I've been on, I catalogued the writings I posted on my Facebook for my friends and family during the first year here with some added photos. It can be verbose and some posts technical, but feel free to take a look. I am humbled if there's anything that can be gained by reading about my #RouieTCjourney.

In closing, I wanted to share a poem/artwork that was displayed at an oncology waiting room from very early in this journey. I remember taking this photo hoping for the day that this poem resonated with me.

Beyond the Eclipse
Pastel by a Person Diagnosed with Cancer
New York


Still I get scared, sometimes.

Not like before, when I ate, slept, and
worked with cancer invading all.

I remember that very well.

Cancer eclipsed my life then. It was like
being swallowed up in a darkness.

Today only its shadow remains.
I can step out of it and get back to living.

The air has new life.

Loved ones are more precious--
those who were there all along.

I have more than I knew.

Time to try what has been passed over.

Taking the effort, I reach for those possibilities.

What really matters is beyond the eclipse.


Thank you for reading and I wish everyone peace of mind and happiness during this holiday season.

Warmly,
Louie

Friday, November 24, 2017

Grateful


Every Thanksgiving's we reflect on things that we're grateful for. Having spent nearly two years in a country that is both familiar and foreign, away from the places I called 'home', the things that I'm truly grateful for are being refined and I wanted to share them. Of course things like family, friends and my current good health are among them; today I wanted to take a moment to dig a little deeper to the essence of why I'm particularly grateful lately.

I'm grateful for family. Number one on my list, always. Aside from holiday visits and short stays, I have been away from my family since I left for college and the entirety of my adulthood. There were periods when I felt detached from the rest of my family because I was away building a life for myself doing what I enjoyed in a new environment that became my second home. Now I feel closer to them than ever before--which is ironic because distance wise I'm further away than I've ever been. I'm so grateful to my family because in the past two years they've helped expand what 'home' means to me: It's not a place, it's a feeling; It's not a singlular location, it's a state of mind that projects from the heart and can take shape in infinite ways. When someone from my family visits me in Japan, the time spent together becomes home. The family group chat is home. We can share the same room via video calls. When we're connected we're always home.

I'm grateful for my friend. Since moving to Japan I've had chances to reconnect in-person with a number of old friends that I've lost contact with for years, a decade, some longer than that. In the age of livestream friendships, it's hard to put into words just how meaningful those reunions are. There's something magical about sharing a moment face to face with a friend from the past that you lost touch with. The phrase 'stay in touch' says a lot about friendship. A hand shake, fist bump, an embrace, shared warmth; those things sustain friendships no matter how much time passes. I'm incredibly grateful I have that in abundance.

I'm grateful for my health. Health is something that's constantly on my mind as a cancer survivor, especially with the encroaching two year milestone in a couple weeks. I'm grateful that I continue to be healthy after all that but, in all honesty, I struggle with how I carry this aspect of my life moving forward. (I don't want to get into that right now, maybe next month after my check up.) Still, I'm grateful for the lessons my body has taught me as time passes by, like the interconnectedness of the mind, body and soul and that you're only truly healthy when all three are aligned.

I hope everyone is full, happy, and spending quality time with loved ones.

Happy Giving Thanks Day.

Thursday, November 9, 2017

Seattle - November 2017

Greetings from Belltown

Pike Place Fish Market

CenturyLink Field
 Chihuly Garden and Glass
 Chihuly Garden and Glass and Space Needle

Space Needle Sunset 1/3

Space Needle Sunset 2/3

Space Needle Sunset 3/3
  
Amgden Helix Pedestrian Bridge